Vitiligo Support International Inc. (VSI) is a patient driven 501(c)(3) nonprofit organization offering a comprehensive resource of vitiligo education, research and awareness for those whose lives have been affected by vitiligo.

We are here to address your questions and concerns and help you connect with our community. You will find the hope, support and healing that can only be offered by those who understand best - those who have walked in your shoes.

Research and Clinical Trials

Vitiligo Support International does not in any way warranty, endorse or maintain any responsibility for the research or clinical studies listed here. Those participating or volunteering do so of their own accord.


A Randomized Controlled Pilot Study to Examine the Use of Micrografting, Using a Novel Grafting Technique, for the Repigmentation of Vitiligo

Principle Investigator - Alexandra B. Kimball MD, MPH
Study Location: Massachusetts General Hospital, Boston, MA

Study Description: The Dermatology Clinical Unit for Research Trials is recruiting subjects 18 years of age and older with vitiligo. The purpose is to study the use of micrografting technique in patients with vitiligo.

The study may last up to 24 weeks and requires about 8 study visits. You will receive up to $550 for participating in this study.

Eligibility Criteria - Subject of 18 years of age and older has 3 comparable vitiliginous areas of trunk or extremities (excluding hands) each measuring at least 3cm×3cm in size, with at least 80% depigmentation, and anticipated equal sun exposure. If you are currently taking certain medications for vitiligo, you may not be eligible for this trial. Please consult your doctor. Other restrictions will be explained at the screening visit.

Enrollment Information - For further information about participating in this trial, contact Lynne at (617) 726-5066 or email
harvardskinstudies@partners.org.


Lei soffre di vitiligine?

L?Istituto Dermatologico San Gallicano (Istituti Fiosioterapici Ospitalieri, IFO, Roma)
sta conducendo unostudio clinico su un nuovo trattamento contro la vitiligine: un farmaco sperimentale che sarà utilizzato incombinazione con fototerapia ultravioletta B a banda stretta (NB-UVB).

Questa terapia e mirata a pazienti adulti affetti da meno di 5 anni da vitiligine non-segmentale sul viso e il corpo.

Lo studio si compone di un periodo di trattamento di 6 mesi con fototerapia NB-UVB 3 volte alla settimana, con o senza la somministrazione del farmaco sperimentale. Seguirà un periodo di follow-up di 6 mesi con una visita presso l? Istituto ogni 2 mesi.

L'intero studio durerà circa 1 anno e comprenderà fototerapia NB-UVB e 11 visite presso Istituto
Dermatologico San Gallicano (IFO, Roma). La partecipazione allo studio è gratuita e le spese di viaggio
saranno interamente rimborsate. I vostri dati saranno trattati in maniera confidenziale.

Siete interessati?

Se siete interessati, vi preghiamo di contattarci: Dr Giovanni Leone
Indirizzo:
Istituto Dermatologico San Gallicano / IFO
Via Elio Chianesi, 53
00144 Roma, Italia


Updated 03/12/11

Take Part in International Study to Find Vitiligo Genes (Questionnaire)
University of Colorado Health School of Medicine

Do you have Vitiligo, or have you had it in the past? Or, does someone in your family have Vitiligo? If so, would you or they be willing to take part in a major research project on Vitiligo?

We have put together an international team of scientists to find the genes that cause Vitiligo. By studying thousands of vitiligo patients from around the world, we have discovered at least 17 genes that contribute to causing vitiligo. Our goal is to discover additional vitiligo risk genes, discover the specific changes in these genes that cause risk for vitiligo and understand how these genes act in combination to confer risk for vitiligo and other autoimmune diseases that are often associated with Vitiligo (including autoimmune thyroid disease, rheumatoid arthritis, psoriasis, pernicious anemia, lupus, Addison disease, and adult-onset insulin-dependent diabetes). Our long-term goal is to better understand the causes of vitiligo and these related diseases, so as to develop better treatments and even approaches to prevention of these diseases altogether.

The first step in your participating is to fill out the questionnaire below (Microsoft Word Document) and send it to us via email or regular mail. The email address and mailing address are contained at the end of the questionnaire. We will then contact respondents that might be appropriate to the study to get further information and arrange for a saliva (spit) sample. We thank you in advance for your help, and we look forward to hearing from you.

If you live in North America and are of Caucasian (white), Hispanic/Latino, or African-American origin, your participation as a research volunteer is vitally needed to help identify the genes linked to vitiligo. Scientists with the international VitGene Consortium project spanning 18 countries are working to understand the biology of vitiligo in order that more effective vitiligo treatments can be designed.

Richard A. Spritz, M.D.
Professor and Director
Human Medical Genetics Program
University of Colorado School of Medicine
Anschutz Medical Campus
12800 East 19th Avenue, Room 3100
P.O. Box 6511, Mail-stop 8300
Aurora, CO 80045 USA

Tel: 303-724-3107
Fax: 303-724-3100
Email: richard.spritz@ucdenver.edu

CLICK HERE TO DOWNLOAD THE QUESTIONNAIRE



  Call for Patients: Vogt-Koyanagi-Harada Disease (VKH)

We are hoping to start a new genetic study specifically on Vogt-Koyanagi-Harada Disease, a rare autoimmune syndrome characterized by uveitis, meningitis, dysacusis, alopecia, poliosis, and vitiligo. If you have VKH disease, please email me as soon as possible,
Thank you,

Richard A. Spritz, M.D.

Tel 303-724-3107
FAX 303-724-3100
Email richard.spritz@ucdenver.edu



 

Check back soon for new opportunities!


Other Research & Treatments:

 
   
 
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