Vitiligo Support International Inc. (VSI) is a patient driven 501(c)(3) nonprofit organization offering a comprehensive resource of vitiligo education, research and awareness for those whose lives have been affected by vitiligo.

We are here to address your questions and concerns and help you connect with our community. You will find the hope, support and healing that can only be offered by those who understand best - those who have walked in your shoes.

Vitiligo Surveys

Vitiligo Support International does not in any way warranty, endorse or maintain any responsibility for the research and/or surveys posted here. Those participating or volunteering do so of their own accord.


A new study by researchers at the University of Sheffield, UK, is looking at whether an online self-help approach can be used to teach coping skills to adults who experience stress, anxiety, or low mood in relation to a broad range of skin conditions. The self-help materials we have developed are based on Compassion-Focused Therapy, which has been developed for people who experience shame and self-criticism. We have focused on one component of this, called mindfulness, which is a type of mental training where you practice focusing your attention and developing an accepting attitude towards yourself. This study uses a brief self-help booklet and audio guide, and asks participants to practice a short mindfulness exercise each day over a two week period.

If eligible, you can choose to be entered into the study, and will receive the self-help materials by email either straight away, or after a short waiting period. You will also be asked to complete a set of questionnaires several times during the study, to see whether the materials are effective. All participants who complete the study will be entered into a prize draw to win a £50 Amazon voucher. This study has received ethical approval from the Department of Psychology ethics committee at the University of Sheffield, UK

If you are aged 16 or above and are interested in taking part, please click on the following link:
https://jfe.qualtrics.com/form/SV_4Mi1nodVUXPyf7n

To find out more information about the study, you can also go to the website below:
http://pcp12mh.wix.com/compassion-and-skin


Patients Invited to Participate
in Online Vitiligo Survey

Sponsored by Nanette B. Silverberg, MD

Departments of Dermatology, St. Luke's-Roosevelt and Beth Israel Medical Centers, New York, NY

Dr. Silverberg is conducting a survey to review medical, genetic, psychological and nutritional factors that may cause or exacerbate vitiligo.

Individuals with vitiligo that have been previously diagnosed by a physician are welcome to contribute to this survey.

The survey will not include any personal information that may identify you to the public.

Click Link to Select the Appropriate Survey Below

ADULT VITILIGO SURVEY

SURVEY FOR YOUR CHILD

 


VITILIGO, THE PATIENT'S POINT OF VIEW

Wherever you live, at Loyola University Chicago we want to hear about your case of vitiligo. This helps us direct our research, and to find support for our current thoughts on progressive depigmentation. The questionnaire should take between 5 and 10 minutes to complete. Please complete the attached form and send to the email address below to have the results included in our database. We intend to publish the data once ample questionnaires have been returned to us. Thank you for your contribution.

I. Caroline Le Poole Ph.D.
Associate Professor of Pathology
Loyola University Medical Center
email:ilepool@lumc.edu

Open the Survey in Microsoft Word format here.


Other Research & Treatments:

 
   
 
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